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Complementary & Alternative Medicine Care in Multiple Sclerosis (CAM Care in MS)
Multiple sclerosis is often said to be an incurable, progressive, and degenerative disease. It is our hypothesis that some of you do not, or will not, have a progressive disease. The goal of this MS study is to collect as much data as possible over a five-year period with the hope of finding dietary and lifestyle factors associated with a slower disease progression.
We are seeking "Positive Deviants".
“Positive Deviance is based on the observation that in every community there are certain individuals or groups (the positive deviants), whose uncommon but successful behaviors or strategies enable them to find better solutions to a problem than their peers. These individuals or groups have access to exactly the same resources and face the same challenges and obstacles as their peers.
The PD approach is a strength-based, problem-solving approach for behavior and social change. The approach enables the community to discover existing solutions to complex problems within the community.” www.positivedeviance.org
How to Participate
We invite you to participate regardless of your health status. The more people participate, the more we learn.
In order to participate in this study, you will need to:
- Read the consent form.
- Fill out the online questionnaire every six months for five years. (~one hour, link to survey on the right -side column of this page)
- Send us copies of all your labs and MRI reports, or ask your provider to do so, over the next five years.
Download the consent form here (PDF); fill them out; mail to:
Dr. Laurie Mischley
Bastyr University, Research Institute
14500 Juanita Dr. NE
Kenmore, WA 98028
Please direct any questions you may have about this survey or results of this study to Dr. Mischley at 425-602-3306. Any questions about your rights as a research subject should be directed to Lizbeth A. Adams at the Bastyr University Office of Research Integrity. Your time and efforts are appreciated.