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Complementary & Alternative Medicine Care in Multiple Sclerosis (CAM Care in MS)

Status: 
Recruiting
Study area: 
Neurology
Principal investigator: 
Laurie Mischley, ND,MPH, PhD(c)
Project period: 
12/21/10 – 12/31/2015

Project Overview

Multiple sclerosis is often said to be an incurable, progressive, and degenerative disease.  It is our hypothesis that some of you do not, or will not, have a progressive disease. The goal of this MS study is to collect as much data as possible over a five-year period with the hope of finding dietary and lifestyle factors associated with a slower disease progression.

What are the "Positive Deviants" doing?

“Positive Deviance is based on the observation that in every community there are certain individuals or groups (the positive deviants), whose uncommon but successful behaviors or strategies enable them to find better solutions to a problem than their peers. These individuals or groups have access to exactly the same resources and face the same challenges and obstacles as their peers.

The Positive Deviance approach is a strength-based, problem-solving approach for behavior and social change. The approach enables the community to discover existing solutions to complex problems within the community.”  www.positivedeviance.org

Participation Requirements:

We invite you to participate regardless of your health status.  The more people participate, the more we learn.  

  • Read the Participant Information Sheet (see box on right side of web page).
  • Have online access, an email address, and basic computer literacy.
  • Complete two online questionnaires every six months for five years. (~60-90 minutes at each time point)

Contact

Please direct any questions you may have about this survey or results of this study to Dr. Mischley at 425-602-3306 or neuroresearch[at]bastyr[dot]edu.  Any questions about your rights as a research subject should be directed to Lizbeth A. Adams at the Bastyr University Office of Research Integrity.  Your time and efforts are appreciated.